Family caregivers in home care: sociodemographic, clinical and anxiety aspects
DOI:
https://doi.org/10.5205/1981-8963.2024.263028Keywords:
Family Caregiver, Home Care, Anxiety, Mental HealthAbstract
Objective: To analyze family caregivers' sociodemographic profile, clinical profile, and anxiety levels in in-home care. Method: This is a quantitative, descriptive study whose data collection occurred from May to July 2021, with 30 main family caregivers of patients in home care. The data were obtained using a structured form and the State-Trait Anxiety Inventory (IDATE) and analyzed using descriptive statistics. Results: The family caregivers were mostly women, with an average age of 45, single, with a complete high school education and low income, dedicated full-time to care, and had comorbidities, particularly systemic arterial hypertension. As for the anxiety levels of the caregivers, it was observed that the majority had a medium level of state anxiety (IDATE-E) and a high level of trait anxiety (IDATE-T). Conclusions: The complexity of the demands faced by family caregivers includes socioeconomic and health challenges, both physical and mental, with an emphasis on anxiety. It is crucial to implement support interventions and public policies that ensure the health and well-being of this population.
References
Oliveira SG, Caldas CP. Processo de transição do familiar para o papel de cuidador familiar de um idoso dependente: uma revisão integrativa. Enferm Foco. 2021;12(3):608-14. DOI: https://doi.org/10.21675/2357-707X.2021.v12.n3.3364
Ahnerth NMS, Dourado DM, Gonzaga NM, Rolim JA, Batista EC. "A gente fica doente também": percepção do cuidador familiar sobre o seu adoecimento. Gerais (Univ Fed Juiz Fora). 2020;13(1):1-20. DOI: https://doi.org/10.36298/gerais2020130106
Silva AME, Almeida JLT, Barbosa P. Perfil de cuidadores de idosos dependentes em contexto de pandemia: impactos na saúde e no trabalho de quem cuida em Portugal. Rev Pesq (Univ Fed Estado Rio J., Online). 2023;15:e12080. DOI: https://doi.org/10.9789/2175-5361.rpcfo.v15.12080
Montenegro LC, Alebral T, Freitas CP, Pimenta AM. O cuidado no domicílio: impactos deste processo na vida do cuidador. Braz J Dev. 2021;7(4)43465-43480. DOI: https://doi.org/10.34117/bjdv7n4-688
Monteiro JKMF, Sá SPC, Bezerra, DRC. Overload and quality of life of the family caregivers of the fourth age elderly. Res Soc Dev. 2021;10(10):e478101018931. DOI: https://doi.org/10.33448/rsd-v10i10.18931
Coppetti LC, Girardon-Perlini NMO, Andolhe R, Dalmolin A, Dapper SN, Machado LG. Habilidade de cuidado e sobrecarga do cuidador familiar de pacientes em tratamento oncológico. Texto & contexto enferm. 2020;(29):e20180451. DOI: https://doi.org/10.1590/1980-265X-TCE-2018-0451
Gorestein C, Wang YP, Hungerbühler I. Instrumentos de avaliação em saúde mental. Porto Alegre: Artmed Editora; 2016.
Silva JK, Boery RNSO. Family caregivers of stroke survivors: burden and related factors. Cienc enferm. 2021;27(11). DOI: https://doi.org/10.29393/ce27-11cfjr20011
Cuevas-Martinez KI, Gutiérrez-Valverde JM. Caracterización de los cuidadores informales de adultos mayores en situación de pandemia por COVID-19 en Tamaulipas, México. Sanus. 2022;7:e265-e265. DOI: https://doi.org/10.36789/revsanus.vi1.265
Santos FGT, Harmuch C, Paiano M, Radovanovic CAT, Rêgo AS, Carreira L. Competência de idosos cuidadores informais de pessoas em assistência domiciliar. Esc Anna Nery Rev Enferm. 2022;26:e20210288. DOI: https://doi.org/10.1590/2177-9465-EAN-2021-0288
Minayo MCS. Cuidar de quem cuida de idosos dependentes: por uma política necessária e urgente. Cien Saude Colet. 2021;26(1):7-15. DOI: https://doi.org/10.1590/1413-81232020261.30872020
Coppetti LC, Nietsche EA, Schimith MD, Radovanovic CAT, Lacerda MR, Girardon-Perlini NMO. Men’s experience of caring for a family member with cancer: a theory based on data. Rev Latinoam Enferm. 2024;32:e4095. DOI: https://doi.org/10.1590/1518-8345.6679.4095
Melo R, Rua M, Santos C, Novais S, Mota L, Príncipe F, et al. Intervenção de enfermagem e coping na transição para cuidador familiar. Revista de Investigação & Inovação em Saúde. 2021;4(1):61-73. DOI: https://doi.org/10.37914/riis.v4i1.119
Silva M, Duarte JC, Melo R, Rua I, Freitas M, Morais P, et al. Ansiedade associada ao desempenho do papel de cuidador familiar de pessoa dependente. Revista de Investigação & Inovação em Saúde. 2021;4(2):63-72. DOI: https://doi.org/10.37914/riis.v4i2.123
Freedman A, Nicolle J. Social isolation and loneliness: The new geriatric giants: Approach for primary care. Can Fam Physician. 2020;66(3):176-182. Available from: https://www.cfp.ca/content/cfp/66/3/176.full.pdf
Rahmani F, Roshangar F, Gholizadeh L, & Asghari E. Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia. Nursing Open. 2022;9(4):1995–2002. DOI: https://doi.org/10.1002/nop2.1205
Melo MDSA, Coura AS, França ISXD, Feijão AR, Freitas CCDSL & Aragão JDS. Sobrecarga e qualidade de vida dos cuidadores de pessoas acamadas em domicílio. Acta Paulista de Enfermagem. 2022;35:eAPE02087. DOI: https://doi.org/10.37689/acta-ape/2022AO02087
Felipe SGB, Oliveira CES, Silva CRDT, Mendes PN, Carvalho KM, Silva-Júnior FL, et al. Ansiedade e depressão em cuidadores informais de idosos dependentes: um estudo analítico. Rev Bras Enferm. 2020;73:e2019851. DOI: https://doi.org/10.1590/0034-7167-2019-0851
Nascimento IS, Santos PC. A normalidade da desigualdade social e da exclusão educacional no Brasil. Caderno de Administração. 2020;28:122-130. DOI: https://doi.org/10.4025/cadadm.v28i0.53834
Teixeira, M. J. C., Abreu, W., Costa, N., & Maddocks, M. Understanding family caregivers’ needs to support relatives with advanced progressive disease at home: an ethnographic study in rural Portugal. BMC palliative care. 2020;19:1-11. DOI: https://doi.org/10.1186/s12904-020-00583-4
Gutierrez DMD, Sousa GS, Figueiredo AEB, Ribeiro MNS, Diniz CX, Nobre GASS. Vivências subjetivas de familiares que cuidam de idosos dependentes. Cien Saude Colet. 2021;26:47-56. DOI: https://doi.org/10.1590/1413-81232020261.30402020
Monte LS, Andrade GDC, Magalhães JLB, Silva TJP, Cárdenas AMC, Silva MP, et al. Caracterização e qualidade de vida de cuidadores familiares: proposta de tecnologia educacional. REAS. 2020;(53):e3551. DOI: https://doi.org/10.25248/reas.e3551.2020
Teixeira LA, Borges MC, Abreu DPH, Ribeiro KB, Shimano SGN, Martins LJP. Caregivers of older adults in palliative care: level of burden and depressive symptoms. Fisioter mov. 2022;35:e35132. DOI: https://doi.org/10.1590/fm.2022.35132
Millani APO, Girardon-Perlini NMO, Coppetti LC, Paz PP, Martins FC, Oliveski CC. Sobrecarga de cuidadores familiares de pacientes em tratamento oncológico. Cul. Cuid. 2021;25(60):290-304. DOI: https://doi.org/10.14198/cuid.2021.60.18
Leão B da S, Araújo YL de S, Pureza DY da, Lima TCV de, Silva MP da, MelimLI da SH-, Melo DP da S. A influência de fatores sociodemográficos na qualidade do sono do cuidador familiar de idosos com Doença de Parkinson e/ou Doença de Alzheimer no estado do Amapá. REAS [Internet]. 2022;15(9):e10940. DOI: https://doi.org/10.25248/reas.e10940.2022
Silva JV, Dias BVB, Nascimento MC, Melo JLL, Francisco R, Fava SMCL, & Reis RD. Características sociodemográficas, estado de saúde e capacidades de autocuidado de cuidadores familiares primários de pessoas idosas. Enfermagem Brasil. 2022;21(4), 400-412. DOI: https://doi.org/10.33233/eb.v21i4.5032
Teles MAB, Barbosa-Medeiros MR, Pinho L de, Caldeira AP. Condições de saúde e sobrecarga de trabalho entre cuidadores informais de pessoas idosas com síndromes demenciais. Rev bras geriatr gerontol. 2023;26:e230066. DOI: https://doi.org/10.1590/1981-22562023026.230066.pt
Santos CF, Gutierrez BAO. Avaliação da qualidade de vida de cuidadores informais de idosos portadores da doença de Alzheimer. REME Rev Min Enferm. 2013;17(4): 792-805. DOI: https://doi.org/10.5935/1415-2762.20130058
Della Corte J, Santos LC, Chrispino RF, Castro JBP, Cabral EA, Miarka B, et al. Impacto da atividade física sobre os níveis de ansiedade durante a pandemia de COVID-19: uma revisão integrativa. Rev Bras Fisiol Exerc. 2022;21(1):61-7. DOI: https://doi.org/10.33233/rbfex.v21i1.5011
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