Impact of chronic kidney disease on adolescents on hemodialisis treatment
DOI:
https://doi.org/10.5205/1981-8963.2019.240286Keywords:
Renal Insufficiency, Chronic, Renal Dialysis, Social Networking, Adolescent, FamilyAbstract
Objective: to understand the social impact of chronic kidney disease in adolescents undergoing hemodialysis. Method: this is a qualitative, descriptive study with adolescents from 12 to 18 years old, who underwent hemodialysis in the hospital unit of Renal Replacement Therapy, through semi-structured interviews. Data was analyzed according to the narrative and figure research method. Results: three thematic categories were identified: Modifications caused by hemodialysis that interfere in the routine; Adolescent feelings associated with the disease and hemodialysis; Family feelings associated with the disease and hemodialysis from the adolescent's perspective. Conclusion: it was concluded that the adolescent undergoes important changes in their daily life, both due to the restrictions necessary to control the disease and physiological changes. Moreover, feelings such as sadness and fear also permeate the care of this patient. Descriptors: Renal Insufficiency, Chronic; Renal Dialysis; Social Networking; Adolescent; Family.
Resumo
Objetivo: compreender o impacto social da doença renal crônica em adolescentes submetidos à hemodiálise. Método: trata-se de estudo qualitativo, descritivo, com adolescentes dos 12 aos 18 anos, que realizavam hemodiálise na unidade hospitalar de Terapia Renal Substitutiva, por meio de entrevista semiestruturada. Analisaram-se os dados segundo o método de pesquisa de narrativas e figura. Resultados: identificaram-se três categorias temáticas: Modificações causadas pela hemodiálise que interferem na rotina; Sentimentos do adolescente associados à doença e à hemodiálise; Sentimentos da família associados à doença e à hemodiálise na perspectiva do adolescente. Conclusão: concluiu-se que o adolescente passa por modificações importantes em seu cotidiano, tanto pelas restrições necessárias para o controle da doença quanto pelas alterações fisiológicas. Revela-se, além disso, que sentimentos como tristeza e medo também permeiam o atendimento a este paciente. Descritores: Insuficiência Renal Crônica; Diálise Renal; Rede social; Adolescente; Família.
Resumen
Objetivo: comprender el impacto social de la enfermedad renal crónica en adolescentes sometidos a hemodiálisis. Método: se trata de un estudio cualitativo y descriptivo con adolescentes de 12 a 18 años que se sometieron a hemodiálisis en la unidad hospitalaria de Terapia de Reemplazo Renal, a través de entrevistas semiestructuradas. Los datos se analizaron de acuerdo con el método de investigación de narrativas y figura. Resultados: se identificaron tres categorías temáticas: modificaciones causadas por hemodiálisis que interfieren en la rutina; Sentimientos adolescentes asociados con la enfermedad y la hemodiálisis; Sentimientos de la familia asociados con la enfermedad y la hemodiálisis desde la perspectiva del adolescente. Conclusión: se concluyó que el adolescente sufre cambios importantes en su vida diaria, tanto por las restricciones necesarias para controlar la enfermedad como por cambios fisiológicos. También se revela que sentimientos como la tristeza y el miedo también impregnan el cuidado de este paciente. Descriptores: Insuficiencia Renal Crónica; Diálisis Renal; Red Social; Adolescente; Familia.
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