Impacto da doença renal crônica em adolescentes em tratamento hemodialítico

Leticia Werner Rêgo, Gisele Martins, Cristiane Feitosa Salviano

Resumo


Objetivo: compreender o impacto social da doença renal crônica em adolescentes submetidos à hemodiálise. Método: trata-se de estudo qualitativo, descritivo, com adolescentes dos 12 aos 18 anos, que realizavam hemodiálise na unidade hospitalar de Terapia Renal Substitutiva, por meio de entrevista semiestruturada. Analisaram-se os dados segundo o método de pesquisa de narrativas e figura. Resultados: identificaram-se três categorias temáticas: Modificações causadas pela hemodiálise que interferem na rotina; Sentimentos do adolescente associados à doença e à hemodiálise; Sentimentos da família associados à doença e à hemodiálise na perspectiva do adolescente. Conclusão: concluiu-se que o adolescente passa por modificações importantes em seu cotidiano, tanto pelas restrições necessárias para o controle da doença quanto pelas alterações fisiológicas. Revela-se, além disso, que sentimentos como tristeza e medo também permeiam o atendimento a este paciente. Descritores: Insuficiência Renal Crônica; Diálise Renal; Rede social; Adolescente; Família.

Abstract

Objective: to understand the social impact of chronic kidney disease in adolescents undergoing hemodialysis. Method: this is a qualitative, descriptive study with adolescents from 12 to 18 years old, who underwent hemodialysis in the hospital unit of Renal Replacement Therapy, through semi-structured interviews. Data was analyzed according to the narrative and figure research method. Results: three thematic categories were identified: Modifications caused by hemodialysis that interfere in the routine; Adolescent feelings associated with the disease and hemodialysis; Family feelings associated with the disease and hemodialysis from the adolescent's perspective. Conclusion: it was concluded that the adolescent undergoes important changes in their daily life, both due to the restrictions necessary to control the disease and physiological changes. Moreover, feelings such as sadness and fear also permeate the care of this patient. Descriptors: Renal Insufficiency, Chronic; Renal Dialysis; Social Networking; Adolescent; Family. 

Resumen

Objetivo: comprender el impacto social de la enfermedad renal crónica en adolescentes sometidos a hemodiálisis. Método: se trata de un estudio cualitativo y descriptivo con adolescentes de 12 a 18 años que se sometieron a hemodiálisis en la unidad hospitalaria de Terapia de Reemplazo Renal, a través de entrevistas semiestructuradas. Los datos se analizaron de acuerdo con el método de investigación de narrativas y figura. Resultados: se identificaron tres categorías temáticas: modificaciones causadas por hemodiálisis que interfieren en la rutina; Sentimientos adolescentes asociados con la enfermedad y la hemodiálisis; Sentimientos de la familia asociados con la enfermedad y la hemodiálisis desde la perspectiva del adolescente. Conclusión: se concluyó que el adolescente sufre cambios importantes en su vida diaria, tanto por las restricciones necesarias para controlar la enfermedad como por cambios fisiológicos. También se revela que sentimientos como la tristeza y el miedo también impregnan el cuidado de este paciente. Descriptores: Insuficiencia Renal Crónica; Diálisis Renal; Red Social; Adolescente; Familia.


Palavras-chave


Insuficiência Renal Crônica; Diálise Renal; Rede social; Adolescente; Família.

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Referências


​Silva LLT, Vecchia BP, Braga PP. Adolescent in people with chronic disease: a comprehensive review. Rev baiana enferm. 2016 Apr/June; 30(2):1-9. Doi: http://dx.doi.org/10.18471/rbe.v30i2.14281

​Kelly MM. Children and adolescents with chronic kidney disease: a population at risk for more than just kidney disease. Nephrol Nurs J [Internet]. 2016 Jan/Feb [cited 2018 Aug 10]; 43(1):67-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27025152

​Sociedade Brasileira de Nefrologia. Censo Brasileiro de diálise de 2015 [Internet]. São Paulo: Sociedade Brasileira de Nefrologia; 2015 [cited 2018 Dec 13]. Available from: https://sbn.org.br

​National Kidney Foundation. KDIGO 2012: clinical practice guideline for evoluation and management of chronic kidney disease. Kidney Int Suppl [Internet]. 2013 Jan [cited 2018 Dec 18]; 3(1):1-150. Available from: https://www.sciencedirect.com/journal/kidney-international-supplements/vol/3/issue/1

​Coutinho MPL, Costa FG. Depression and chronic renal failure: a socio-psychological analysis. Psicol Soc. 2015 May/Aug;27(2):449-59. Doi: http://dx.doi.org/10.1590/1807-03102015v27n2p449

​El Shafei AM, Soliman Hegazy I, Fadel FI, Nagy EM. Assessment of quality of life among children with end-stage renal disease: a cross-sectional study. J Environ Public Health. 2018 Sept; 2018:8565498. Doi:10.1155/2018/8565498

​Minayo MCdS. Scientificity, generalization and dissemination of qualitative studies. Ciênc Saúde Colet. 2017 Jan; 22(2):16-7. Doi: http://dx.doi.org/10.1590/1413-81232017221.3030201

Lei nº 8.069 de 13 de Julho de 1990 (BR). Dispõe sobre o Estatuto da Criança e do Adolescente e dá outras providências. Diário Oficial da União [Internet]. 1990 July 13 [cited 2018 Aug 10]. Available from: http://www.planalto.gov.br/ccivil_03/leis/l8069.htm

​Muylaert CJ, Sarubbi Jr V, Gallo PR, Neto Rolin ML, Reis AOA. Narrative interviews: an important resource in qualitative research. Rev esc enferm USP. 2014 Dec; 48(2):184-9.Doi: http://dx.doi.org/10.1590/S0080-623420140000800027

​Abreu IS, Kourrouski MFC, Santos DMSS, Bullinger M, Nascimento LC, Lima RAG, et al. Children and adolescents on hemodialysis: attributes associated with quality of life. Rev Esc Enferm USP. 2014 Aug; 48(4):602-9. Doi: http://dx.doi.org/10.1590/S0080-623420140000400005

​Tjaden L, Tong A, Henning P, Groothoff J, Craig JC. Children’s experiences of dialysis: a systematic review of qualitative studies. Arch Dis Child. 2012 May; 97(5):395-402. Doi: 10.1136/archdischild-2011-300639.

​Cordeiro AP, Rossetti NLM, Duarte LV, Moriya TM, Terçariol CAS, Ferreira V. Complications during hemodialysis and nursing care. Enferm Rev. 2016; 19(2):238-41. Available from: http://periodicos.pucminas.br/index.php/enfermagemrevista/article/view/13162/12388

El-Gamasy MA, Eldeeb MM. Assessment of physical and psychosocial status of children with ESRD under regular hemodialysis, a single centre experience. Int J Pediatr Adolesc Med. 2017 June; 4(2):81-6. Doi: https://doi.org/10.1016/j.ijpam.2017.01.001

​Bossola M, Di Stasio E, Marzetti E, Lorenzis K, Pepe G, Vulpio C. Fatigue is associated with high prevalence and severity of physical and emotional symptoms in patients on chronic hemodialysis. Int Urol Nephrol. 2018 July; 50(7):1341-6. Doi: 10.1007/s11255-018-1875-0

​Souza MAd, Melo LL. Being adolescent with chronic renal failure: a view through existential phenomenology. Escola Anna Nery Rev Enferm. 2018 May; 22(2):1-8. Doi: http://dx.doi.org/10.1590/2177-9465-ean-2017-0368

​Aoto H, Nakatani H, Kanayama S, Okada S-I, Fukada M, Hanaki K. Qualitative analysis of the psychosocial adaptation process in children with chronic kidney disease: toward effective support during transition from childhood to adulthood. Yonago Acta Med. 2018 Sept; 61(3):166-74. Doi: https://dx.doi.org/10.33160%2Fyam.2018.09.004

​Medyńska A, Zwolińska D, Grenda R, Miklaszewska M, Szczepańska M, Urzykowska A, et al. Psychosocial aspects of children and families treated with hemodialysis. Hemodial Int. 2017 Oct; 21(4):557-65. Doi: 10.1111/hdi.12526

​Paula TB, Souza BM, Medeiro N, Malt SME, Gutierrez F, Lourenço LDA, et al. Ludic activities to improve psychological well-being with patients in hemodialysis. Psicol ciênc prof. 2017 Jan/Mar; 37(1):146-58. Doi: http://dx.doi.org/10.1590/1982-3703000682014

​Melo GAA, Rodrigues AB, Firmeza MA, Grangeiro ASM, Oliveira PP, Caetano JA. Musical intervention on anxiety and vital parameters of chronic renal patients: a randomized clinical trial. Rev Latino-Am Enferm. 2018 Mar ; 26:e2978. Doi: 10.1590/1518-8345.2123.2978

​Silva LAGP, Baran FDP, Mercês NNA. Music in the care of children and adolescents with cancer: integrative review. Texto contexto-enferm. 2016 Nov; 25(4):01-10. Doi: http://dx.doi.org/10.1590/0104-07072016001720015

​Lima AGT, Sales CCS, Serafim WFL. Burden, depression and anxiety in primary caregivers of children and adolescents in renal replacement therapy. Braz J Bras Nefrol [Internet]. 2019 Feb [cited 2018 Aug 10]. Available from: http://www.scielo.br/pdf/jbn/2019nahead/pt_2175-8239-jbn-2018-0039.pdf

​Abreu IS, Nascimento LC, Lima RAG, Santos CB. Children and adolescents with chronic kidney disease in haemodialysis: perception of professionals. Rev Bras Enferm. 2015 Nov/Dec; 68:1020-6. Doi: http://dx.doi.org/10.1590/0034-7167.2015680604i

​Pedroso VSM, Siqueira HCH. Chronic kidney failure: the family adaptation process. Ensaios Ciênc Biol Agrár Saúde [Internet]. 2016 [cited 2018 Dec 12]; 20(2):79-85. Available from: http://www.redalyc.org/articulo.oa?id=26046651004




DOI: https://doi.org/10.5205/1981-8963.2019.240286



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Esta obra está licenciada sob uma licença Creative Commons Atribuição 4.0 Internacional.

 

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